Resources

Introduction

"I'm sure to rub people the wrong way when I criticize those who won't try the diet [Gluten-free/Casein-free], but right now we just don't know for certain which autistic kids need to be on it. From my perspective, it is heartbreaking to think of the children like my son, whose autism is being caused by these proteins, who are being brain-damaged at every meal by loving parents unwilling to take the plunge."

Karyn Seroussi (from her book Unraveling the Mystery of Autism and Pervasive Developmental Disorder: A Mother's Story of Research and Recovery pg. 4)

"There is NO excuse for not doing SCD [the Specific Carbohydrate Diet TM]. It is not that hard. ... There is no excuse for not doing what Sid Baker now says is 'one of the best treatments for kids with autism' that he has ever seen." Judy Gorman (from her article The Specific Carbohydrate Diet pg. 94 in the book Autism: Effective Biomedical Treatments by Jon Pangborn and Sidney M. Baker)

Websites

www.gfcf-diet.talkaboutcuringautism.org
An excellent site to help you get started on a GFCF diet. It addresses many practical issues - including the concern of an increase to your food budget.

www.gfcf.com
Extensive recipe listing for GFCF meals and also yummy desserts!

www.autismndi.com
Parent researchers, Lisa Lewis and Karyn Seroussi, created the Autism Network for Dietary Intervention (ANDI) to help families get started on and maintain an appropriate diet.

www.breakingtheviciouscycle.info
Based on the book by Elaine Gottschall, developer of the Specific Carbohydrate Diet™.

www.pecanbread.com
Website for parents starting the Specific Carbohydrate DietTM. Excellent list of recipes.

Recommended Reading

Breaking the Vicious Cycle - Intestinal Health Through Diet by Elaine Gottschall, BA, MSc

Special Diets for Special Kids: Understanding and Implementing a Gluten and Casein Free Diet to Aid in the Treatment of Autism and Related Developmental Disorders by Lisa Lewis, PhD

Special-Needs Kids Eat Right (Strategies to help Kids on the Autism Spectrum Focus, Learn, and Thrive) by Judy Converse, MPH, RD, LD

The Kid-Friendly ADHD & Autism Cookbook (The Ultimate Guide to the Gluten-Free, Casein-Free Diet) by Pamela J. Compart, MD and Dana Laake, RDH, MS, LDN

Introduction

"The fact of the full recovery of so many children tells us that it is possible. The circumstances of these children's recoveries tell us that they were due to the kinds of biomedical interventions described in this book. The message of these recoveries is, to be sure, one of hope, which cannot be completely fulfilled for all children with the knowledge available to us as of this writing. The meaning of these recoveries is that words such as 'incurable', 'untreatable' and 'permanent' should drop from our dialog about autism. The challenge of these recoveries is to perfect our understanding of the factors that make it look easy for some children but difficult for others."
Sidney M. Baker, MD
(from the Preface to the book Autism: Effective Biomedical Treatments by Jon Pangborn and Sidney M. Baker)

Websites

www.autismcanada.org
Autism Canada Foundation is a national, volunteer led organization, providing treatment and resource information to families living with autism, and influencing related health care and government policy.

www.autismone.com
US-based website with blogs, radio podcasts and an extensive library of video presentations. AutismOne organizes an international conference each year in Chicago.

www.recoveryvideos.com
This site was created by Stan Kurtz, a parent advocate whose child recovered from autism through biomedical interventions.

www.tacanow.com
Talk About Curing Autism was started by a small group of parents in California. Website is very supportive for the newly diagnosed. Live Chat available with a TACA parent.

Recommended Reading

Children with Starving Brains by Jaquelyn McCandless, MD

Healing and Preventing Autism by Jenny McCarthy and Jerry Kartzinel, MD

Healing Our Autistic Children by Julie Buckley, MD

Unraveling the Mystery of Autism and Pervasive Developmental Disorder: A Mother's Story of Research and Recovery by Karyn Seroussi

Introduction

Dr. Rimland believed that the greatest advances in the field of autism occur when professionals collaborate with parents, who are the true experts on what works and what doesn't. As a result, clinicians and researchers affiliated with Defeat Autism Now! do something remarkable: they listen to parents and to other health professionals who report success with investigational treatments or who offer ideas about possible interventions. They investigate the scientific basis for these treatments or ideas, often do clinical trials and analytical studies, discuss the results in think tank forums, and extensively evaluate each approach's safety, efficacy, and appropriateness. If a treatment or strategy passes muster, it is formally presented at a think tank and then at a general conference.

The goal of this rapid, intense study is to put information quickly into the hands of the parents and professionals who need it. Typically, Defeat Autism Now! participants can accumulate enough solid information about a new treatment within a year or two to know if it is both valuable and safe.

Because there are no guarantees that any intervention can help a particular child, Defeat Autism Now! does not tell parents and doctors what approaches to use. Instead, we empower parents and physicians by giving them the information they need to make informed treatment choices. The result: growing numbers of autistic children who are making great strides, and many who are recovering.

From www.autism.com (The Autism Research Institute and Defeat Autism Now! -- Who We Are and What We Do)

Websites

www.autism.com
Website for the Autism Research Institute. ARI was founded in 1967 by Dr. Bernard Rimland, the researcher who overturned the theory that autism was a reaction to bad parenting. Includes a comprehensive list of parent ratings of the behavioural effects of biomedical treatments.

www.thoughtfulhouse.org
A research and treatment center in Austin, Texas. Autism prevalence graphs show the alarming rise in rates of autism in the US.

Recommended Reading

Autism: Effective Biomedical Treatments (Have We Done Everything We Can for This Child? Individuality in an Autism Epidemic) by Jon Pangborn, PhD and Sidney MacDonald Baker, MD

Changing the Course of Autism - A Scientific Approach for Parents and Physicians by Bryan Jepson, MD

Poisoned Profits - The Toxic Assault on Our Children by Alice and Philip Shabecoff